Alzheimer’s Disease: An Unplanned Journey
Theresa Hocker, Executive Director, Alzheimer’s Association of North Central Texas, LIVING WELL Magazine
- Jean’s husband was just diagnosed with early onset Alzheimer’s disease. She thought her husband had been going through a mid-life depression. Though it was apparent his memory had been playing tricks for over a year, his judgment had led to some disastrous consequences for the family business, and his mood swings were now unpredictable at best. Jean never imagined Alzheimer’s could be the explanation. She felt overwhelmed.
- Virginia moved back to Texas to be near her parents, since her father sounded increasingly stressed and unsure of how to care for her mother who had been diagnosed with Alzheimer’s disease six years ago. Until now, her parents had managed without her help. At this point, her mother was up most nights, had become incontinent and was noticeably more confused. Her father was adamant he would not consider nursing home placement.
- Three months ago Tony was diagnosed with Alzheimer’s disease. He continues to drive but has gotten lost more than once. He does his best to find ways to compensate for his memory loss. He knows he won’t be able to function independently in the long run, but for now is determined to make the most of each day. His children appreciate their father’s self-reliance but are concerned about his safety and that of others around him. They think he needs to give up driving and should no longer live alone.
After receiving a diagnosis of Alzheimer’s disease, most families feel their lives have been shattered. Those most closely affected are stunned when the reality of the diagnosis takes hold. Tension among family members is not uncommon, as the disease takes a toll emotionally, physically and financially on all involved. Few families are prepared for the inevitable array of changes in their lives.
The Alzheimer’s Association has this message for families: You are not alone. You are not powerless. Focus on the now, but take steps to prepare for the future. Contact key resources early. Since Alzheimer’s disease progresses slowly, there is usually time to manage things in small increments. You should expect the best, but be prepared for the worst.
Families should not wait to educate themselves, execute legal documents or look into resources that might become necessary. Make a plan for the future and do not wait until the point of crisis. Waiting may negate the ability of the person with Alzheimer’s disease to participate in decision making for his or her own future. Medications, early stage services, environmental modifications and family education can and do make a huge difference for those dealing with the disease.
The Alzheimer’s Association is the oldest and largest national voluntary health organization committed to combating Alzheimer’s disease. The North Central Texas Chapter serves as a critical resource for those coping with this long-term, devastating disease. The chapter offers these services to help families through their unplanned journey:
Helpline (1-800-272-3900): Support, information, referrals, and a knowledgeable and caring listener is available 24 hours a day/7 days a week. Callers can talk one-on-one with staff and volunteers who have expertise in Alzheimer’s disease and caregiving.
Family and Caregiver Support Groups: These groups offer participants the chance to express their feelings and learn coping techniques from one another. Many groups also host educational programs on important topics such as legal and financial planning, research and how to handle common challenges.
Early Stage Support Groups: These groups are for those in the early course of the disease process. The group provides education and support to help participants cope and adjust to the changes imposed by the disease.
Caregiver and Professional Education: Programs and outreach efforts target various audiences to provide an array of education and training on Alzheimer-related topics.
Case Management: A professional social worker assists families in identifying services and coordinating the best possible care for their loved one at home.
Medic Alert + Safe Return: This is a nationwide service that provides an identification bracelet and other measures to help families and police locate memory-impaired persons who wander and become lost.
Newsletter: This is a quarterly publication with valuable information about research, coping strategies, community resources, public policy and chapter programs.
Web Site (www.alz.org/northcentraltexas): This site provides valuable information about Alzheimer’s disease and our chapter programs.
Lending Library: The library offers a wide selection of books, pamphlets and videos available for checkout through the chapter office.
Please call the Alzheimer’s Association at 1-800-272-3900. You will be connected to the office closest to you. Remember you are not alone.
“This article was sponsored by The Courtyards, Fort Worth’s Finest Community For Senior Living. Please call the following information regarding independent, retirement, or assisted living for seniors. See back cover for more information.”
