By Nancy Jackson, MBA, past caregiver and support leader
The news is filled with phrases like “America’s unseen workforce,” “on the brink of a caregiving emergency,” and “family caregivers in the United States are being challenged by a swelling aging population.” The proposed solutions often include more legislation, stronger policy infrastructure, special funding programs, and more quality long-term care facilities.
But caregivers are asking: Who helps me now? Who understands what I’m dealing with today?
The answer: other caregivers participating in a support group. They know the day-to-day realities, the resources they’ve found, and the practical tips that make each day more doable. They know the guilt, the regret, the fear, and the grief.
Guilt that asks us every day, “Am I doing the right things for my loved one?” Guilt when you get angry. Regret for what you didn’t take the time to do when you had the chance. Regret for not recognizing the issues sooner. Fear that gnaws at you—did I give the right medicine, make the right choices, provide the best care? And the waves of grief for the loss of what you had and the future that was supposed to be.
Participating, even for an hour, gives you a break from those doubts, helps answer your questions, and connects you to others who understand. You don’t have to explain everything every time; they already get it. They understand how you need a break from the day-to-day, how you struggle with financial strain and medical needs.
Although it doesn’t solve every caregiver challenge, it gives you a chance to breathe and to acknowledge that you can make it through this journey. Don’t forget that caring for the caregiver is just as critical as caring for the patient.
If you would like to learn more about groups, please call Nancy Jackson at 903-868-9315.
